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A leading cause of birth defects is a virus that many expectant parents have never heard about. That may change soon thanks to the advocacy of parents whose children suffered birth defects due to the common virus: they’ve made a breakthrough this week, securing screenings within hours of birth for newborn babies.
Cytomegalovirus , or CMV, infects more than half of adults over their lifetime, typically presenting no symptoms even as it stays within a person’s body. One in every 200 babies has congenital CMV at birth, according to the Centers for Disease Control and Prevention . About a fifth of babies born with CMV show symptoms , which can include smaller head size, liver and lung problems, hearing loss, or a rash, and some later show developmental delays.
State officials already screen for dozens of diseases and genetic disorders. With CMV screening, they’ll now test blood for evidence of viral DNA. It’s important to identify the virus within the first three weeks of life, pediatricians say, because during that critical period, physicians can take steps to avert serious health effects through monitoring and treatment.
“There are interventions you can offer that can improve the child’s life,” said Dr. Mark Schleiss, a professor of pediatrics at the University of Minnesota Medical School affiliated with M Health Fairview Masonic Children’s Hospital, in Minneapolis. “Those include monitoring for hearing loss, monitoring their neurologic development, and in some cases, treating them with an antiviral medication that can mitigate the damage to the developing brain and the developing ear.”
“Why didn’t anyone tell me?” she said. “Why didn’t I know?”
Elizabeth had profound brain damage. As a teen, she still couldn’t lift her head, Saunders said. Elizabeth had worsening seizures and died from one at age 16.
After her daughter’s death, Saunders said she had a recurring nightmare of being in a classroom, sitting in a circle with other parents looking to her to speak. In the dream, she couldn’t get any words out, and then she’d wake up. She credits that experience with helping launch years of advocacy to warn parents about CMV.
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